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Paying for Care

How to Pay for Home Care in the United States: A Comprehensive Guide for Families

Updated August 2026

Reviewed by Valerie VanBooven, RN, BSN

Most people who need long-term support would prefer to receive it at home. The challenge is figuring out how to pay for the caregivers, nurses, transportation, meals, equipment, respite, and other services that make living at home possible.

There is no single national home-care benefit that covers everyone. Families typically build a plan from several sources: personal income, savings, Medicare-covered medical services, Medicaid, veterans benefits, long-term care insurance, local aging programs, tax benefits, and unpaid family assistance.

The cost can be substantial. CareScout's 2025 Cost of Care Survey found a national median rate of $35 per hour for non-medical in-home care, equal to approximately $80,080 per year for 44 hours of care each week. Skilled private-duty nursing had a national median rate of $90 per hour. Actual prices vary according to location, schedule, provider type, and the complexity of the person's needs. (Genworth Financial, Inc.)

This guide explains the major ways Americans pay for care at home, what each option may cover, and the restrictions families should understand before making financial decisions.

Important: This article provides general educational information. Medicaid eligibility, insurance coverage, employment rules, taxes, and veterans benefits depend on individual circumstances and may change. Families facing major financial or legal decisions should consult the appropriate government agency and qualified legal, tax, insurance, or financial professionals.

Begin by Identifying the Type of Care Needed

The terms home care and home health care are often used interchangeably. For payment purposes, they are different.

Non-medical home care

Non-medical home care helps a person remain safe and independent at home. Services may include:

  • Bathing, dressing, grooming, and toileting
  • Walking, transferring, and fall-prevention assistance
  • Meal preparation and feeding
  • Medication reminders
  • Light housekeeping and laundry
  • Shopping and errands
  • Transportation and appointment assistance
  • Companionship
  • Dementia supervision
  • Respite for an unpaid caregiver

Many of these tasks fall into two categories. Activities of daily living, or ADLs, include bathing, dressing, toileting, transferring, continence care, and eating. Instrumental activities of daily living, or IADLs, include meal preparation, shopping, housework, managing medications, using transportation, and handling finances or communications. (ACL)

Home health care

Home health care is medical or therapeutic care delivered in the home. It may include:

  • Skilled nursing
  • Wound care
  • Injections or intravenous therapy
  • Physical therapy
  • Occupational therapy
  • Speech-language pathology
  • Monitoring an unstable medical condition
  • Teaching a family caregiver how to perform healthcare tasks

A person may need both types of care. For example, Medicare might cover intermittent nursing and physical therapy after a hospitalization, while the family privately pays for daily help with bathing, meals, and supervision.

Determining which tasks are medical, which are personal, and which can be handled through community programs is the first step toward finding the right payment source.

1

Private Pay: Income, Savings, and Family Contributions

Private pay is the most flexible way to purchase home care. It allows the family to select the provider, schedule, duties, and number of hours without meeting the eligibility requirements of a public program or insurance policy.

Private-pay funds may come from:

  • Social Security retirement, disability, or survivor income
  • Pension income
  • Retirement-account withdrawals
  • Savings and investments
  • Trust distributions
  • Proceeds from selling property
  • Support from adult children or other relatives
  • An inheritance or legal settlement
  • Life insurance cash value
  • Home equity

Private pay does not necessarily mean purchasing full-time care. Many families buy assistance during the times of greatest need, such as morning personal care, transportation to medical appointments, afternoon dementia supervision, or evening meal preparation.

Hiring through a home care agency

An agency generally assumes responsibility for recruiting, screening, employing, scheduling, and supervising caregivers. It may also provide:

  • Payroll and tax administration
  • Workers' compensation insurance
  • Professional liability coverage
  • Caregiver training
  • Background checks
  • Backup coverage when a caregiver is unavailable
  • A supervisor or care coordinator
  • Replacement of a caregiver who is not a good match

Agency care usually costs more than paying a worker directly because the rate includes these administrative and employment responsibilities.

Families should ask an agency for a written explanation of:

  • Hourly rates
  • Minimum shift requirements
  • Weekend and holiday rates
  • Overtime policies
  • Transportation and mileage charges
  • Care-plan and assessment fees
  • Cancellation policies
  • Duties caregivers may and may not perform
  • Backup-care procedures
  • Insurance and licensing

Hiring a caregiver directly

Directly hiring a caregiver may provide more control and continuity, but it can create household-employer responsibilities.

The IRS generally considers a caregiver to be a household employee when the family controls both what work is performed and how it is performed. This may be true even when the worker is hired part-time or through a referral list. Caretakers, health aides, drivers, and private nurses are among the workers who may be classified as household employees. (IRS)

For 2026, federal Social Security and Medicare employment taxes generally apply when a household employer pays an individual household employee at least $3,000 in cash wages during the year. State unemployment insurance, wage, overtime, workers' compensation, paid-leave, and recordkeeping rules may also apply. (IRS)

A direct-hire arrangement should include a written agreement addressing:

  • The caregiver's duties
  • Work hours and schedule
  • Hourly rate and overtime
  • Payroll and tax treatment
  • Timekeeping
  • Transportation and mileage
  • Confidentiality
  • Emergency procedures
  • Time off and backup coverage
  • Termination of the agreement

Paying a caregiver "off the books" can create tax, wage, insurance, and liability problems for the family and the worker.

Paying a family member privately

A parent or other care recipient may use personal funds to pay a relative for providing care. A written personal-care agreement is especially important when other family members are involved or when the care recipient may later apply for Medicaid.

The agreement should be signed before services are provided and should describe the work, schedule, compensation, and payment records. Compensation should be reasonable for the services and local market.

Payments made without documentation can lead to family disputes and may be questioned during a Medicaid eligibility review. An elder-law attorney can help structure an agreement that complies with state law and supports the care recipient's estate and Medicaid planning.

2

Medicare: Coverage for Skilled Home Health, Not General Long-Term Home Care

One of the most common misunderstandings about paying for home care is the belief that Medicare will cover ongoing personal assistance.

Original Medicare generally does not pay for long-term custodial care, including ongoing help with bathing, dressing, toileting, meals, transportation, or supervision when those are the only services the person needs. (Medicare)

When Medicare covers home health care

Medicare may cover home health services when all applicable requirements are met. In general:

  • The person must need part-time or intermittent skilled nursing or qualifying therapy.
  • The person must be considered homebound under Medicare's rules.
  • A physician or other authorized healthcare provider must assess the person and order the care.
  • A Medicare-certified home health agency must provide the services.
  • The care must be included in an approved plan of care.

Covered services may include:

  • Part-time or intermittent skilled nursing
  • Physical therapy
  • Occupational therapy
  • Speech-language pathology
  • Medical social services
  • Medical supplies
  • Certain durable medical equipment
  • Part-time or intermittent home health aide assistance when the patient is also receiving qualifying skilled services

Medicare does not cover home health aide care when personal care is the only service needed. It also does not pay for 24-hour care at home, routine meal delivery, or homemaker services unrelated to a covered medical plan of care. (Medicare)

A qualifying beneficiary generally pays nothing for Medicare-covered home health visits. The Part B deductible and 20% coinsurance generally apply to covered durable medical equipment. (Medicare)

Medicare Advantage

Medicare Advantage plans must cover Medicare-covered home health services. Some plans may offer additional benefits or care-management services that Original Medicare does not provide.

Extra benefits vary by:

  • Plan
  • County
  • Year
  • Medical eligibility
  • Provider network
  • Prior-authorization rules

Families should review the plan's current Evidence of Coverage and ask the plan to confirm benefits in writing. An advertisement describing "in-home support" does not necessarily mean the plan will pay for an ongoing private-duty caregiver.

Medigap

Medigap policies help pay deductibles, coinsurance, and copayments associated with services covered by Original Medicare. They generally do not cover long-term care or private-duty nursing. (Medicare)

Medicare caregiver training

Medicare Part B may cover caregiver training when a healthcare provider determines that the training is necessary for the patient's treatment plan.

Training may address:

  • Safe transfers
  • Medication assistance
  • Wound care
  • Prevention of pressure injuries and infections
  • Helping with daily tasks
  • Communication techniques
  • Management of a medical condition

The caregiver may receive individual or group training, sometimes without the patient present. After the Part B deductible, the beneficiary generally pays 20% of the Medicare-approved amount. This benefit does not pay the caregiver's wages, but it can help family caregivers provide safer care. (Medicare)

The Medicare GUIDE Model for Dementia Care

The Guiding an Improved Dementia Experience Model, known as GUIDE, is a Medicare program for qualifying people with dementia and the family members or other unpaid caregivers who support them.

The voluntary model began July 1, 2024, and is scheduled to operate for eight years. Participating organizations provide coordinated dementia care intended to reduce fragmented services and help people with dementia remain in their homes and communities. (Centers for Medicare & Medicaid Services)

GUIDE services may include:

  • A comprehensive assessment
  • An individualized care plan
  • A designated care navigator
  • Coordination among healthcare and community providers
  • A 24-hour support line
  • Caregiver education and skills training
  • Support groups
  • Individual caregiver support
  • Screening for food, transportation, housing, and other social needs
  • Referrals to community services
  • Respite care for qualifying participants

GUIDE respite benefits

CMS reimburses GUIDE participants for up to a base annual cap of $2,500 per eligible patient, adjusted for inflation, for services that temporarily relieve an unpaid caregiver.

Respite may be provided:

  • In the person's home
  • Through an adult day center
  • In an eligible short-term respite facility

GUIDE participants may not charge aligned patients cost-sharing for GUIDE care-management or respite services. CMS pays the participating dementia-care organization, which arranges or contracts for the approved respite. The benefit is not an unrestricted cash payment to the family. (Centers for Medicare & Medicaid Services)

The respite benefit can help a caregiver attend appointments, rest, work, travel, or handle other responsibilities. Because the benefit is limited, it should generally be treated as one component of a larger dementia-care plan rather than a replacement for ongoing home care.

Who may qualify for GUIDE?

A person generally must:

  • Have dementia confirmed by a clinician associated with the GUIDE participant
  • Be enrolled in Medicare Parts A and B
  • Have Medicare as the primary payer
  • Not be enrolled in Medicare Advantage or PACE
  • Live in a private residence or certain approved residential care communities
  • Not be a long-term nursing-home resident
  • Not live in a memory care unit
  • Not have elected the Medicare hospice benefit
  • Not already be aligned with another GUIDE participant

Enrollment is voluntary, and CMS confirms eligibility after the patient or caregiver consents to participate. (Centers for Medicare & Medicaid Services)

Beginning July 1, 2026, a GUIDE participant must have a CMS-approved partnership arrangement with a residential care community before serving residents there. Residents of qualifying assisted living, group home, adult family home, or similar settings may receive many GUIDE services, but they are not eligible for GUIDE-funded respite. As of July 2026, residents of designated memory care units are not eligible for the model. (Centers for Medicare & Medicaid Services)

GUIDE is a nationwide Medicare model, but it is not available through every doctor or in every ZIP code. Families can review CMS's current participant list or call 1-800-MEDICARE to ask whether a participating dementia-care organization serves their area.

3

Medicaid Home and Community-Based Services

For people who meet financial and functional eligibility requirements, Medicaid is one of the most important potential sources of payment for ongoing home care.

Medicaid is administered by individual states within federal requirements. Program names, income limits, asset rules, covered services, provider networks, and waiting-list policies vary significantly.

States may provide home and community-based services through:

  • Section 1915(c) waivers
  • Section 1915(i) state-plan services
  • Section 1915(j) self-directed personal assistance
  • Community First Choice programs
  • Section 1115 demonstrations
  • Managed long-term services and supports
  • Other state-plan personal-care benefits

Depending on the state and program, covered services may include:

  • Personal care
  • Home health aides
  • Homemaker assistance
  • Case management
  • Respite
  • Adult day health care
  • Transportation
  • Home modifications
  • Assistive technology
  • Emergency-response systems
  • Nursing
  • Caregiver training

Section 1915(c) waivers permit states to provide medical and non-medical services to people who would otherwise qualify for institutional care. States may target waivers to particular populations, diagnoses, ages, or geographic areas and may limit the number of participants served. (Medicaid)

Medicaid eligibility

A person may need to meet:

  • State income requirements
  • State asset requirements
  • Citizenship and residency requirements
  • A functional level-of-care standard
  • Program-specific age or diagnosis requirements

Qualifying financially for regular Medicaid does not automatically mean the person qualifies for a home-care waiver. Conversely, some waiver programs use special financial rules that allow people with higher income than the regular Medicaid limit to qualify.

Because openings may be limited, families should apply or request screening before the need becomes urgent.

Can Medicaid pay a family caregiver?

Sometimes.

Self-directed Medicaid programs allow the person receiving services — or an authorized representative — to participate in recruiting, hiring, training, and supervising caregivers.

At a state's option, certain self-directed programs may allow the participant to hire:

  • Adult children
  • Siblings
  • Other relatives
  • Friends or neighbors
  • In some programs, a spouse or another legally responsible relative

States decide which relatives may be paid, the hourly rate, approved hours, training requirements, background checks, and payroll procedures. (Medicaid)

Families should ask the state Medicaid agency or Aging and Disability Resource Center specifically about:

  • Consumer-directed services
  • Participant-directed services
  • Self-directed personal assistance
  • Cash and counseling
  • Structured family caregiving
  • Paid family caregiver programs

Asset transfers and the five-year lookback

Families should not give away money, transfer a home, add another person to an account, or sell property below fair market value solely to qualify for Medicaid without first receiving qualified legal advice.

Medicaid long-term-services applicants can be denied coverage when they or a spouse transferred assets for less than fair market value during the five years before applying. The rule applies to nursing-facility coverage and certain home and community-based waiver services. (Medicaid)

Protections for a spouse

Medicaid's spousal impoverishment rules protect a portion of a married couple's resources and income for the spouse who continues living in the community. The protected amounts are updated periodically, and state implementation can differ. (Medicaid)

Medicaid estate recovery

States are generally required to seek recovery from the estate of a Medicaid enrollee age 55 or older for certain nursing-facility services, home and community-based services, and related hospital and prescription services.

Recovery is restricted when a surviving spouse, a child under 21, or a blind or disabled child survives the beneficiary. States must also establish hardship-waiver procedures. (Medicaid)

Medicaid planning should therefore consider more than immediate eligibility. It should also address:

  • Spousal protection
  • The home
  • Estate recovery
  • Existing trusts
  • Family caregiver payments
  • Tax consequences
  • Future care needs

An elder-law attorney familiar with the applicant's state can help families avoid transfers or arrangements that unintentionally delay benefits.

4

Veterans Benefits and VA Home-Care Programs

Eligible veterans may have several sources of home-care support. The programs serve different purposes, and qualifying for one does not automatically qualify a veteran for all of them.

VA home and community-based services may include:

  • Homemaker and Home Health Aide Care
  • Skilled Home Health Care
  • Home-Based Primary Care
  • Veteran-Directed Care
  • Adult Day Health Care
  • Respite care
  • Telehealth
  • Palliative care
  • Hospice

Eligibility generally depends on clinical need, enrollment or eligibility for VA healthcare, service availability, and sometimes the veteran's service-connected disability status and financial circumstances. A copayment may apply. (Veterans Affairs)

VA Homemaker and Home Health Aide Care

This program may arrange for a trained aide to help an eligible veteran with daily activities. Assistance may include:

  • Bathing
  • Dressing
  • Grooming
  • Toileting
  • Eating
  • Mobility
  • Grocery shopping
  • Other approved personal-care tasks

The number of hours is based on an assessment and VA authorization. It is not automatically a full-time benefit.

VA Skilled Home Health Care

VA Skilled Home Health Care can help veterans who need clinical services following a hospital or nursing-home stay or who have continuing skilled needs.

Services may include:

  • Skilled nursing
  • Case management
  • Physical therapy
  • Occupational therapy
  • Speech therapy
  • Wound care
  • Intravenous antibiotics

Skilled home health can sometimes be combined with other VA home and community-based services. (Veterans Affairs)

Veteran-Directed Care

Veteran-Directed Care allows qualifying veterans to exercise greater control over approved personal-care services. The veteran or representative works with a counselor to develop a spending plan and may be able to recruit, hire, and supervise workers.

Depending on local program rules, the worker may be a family member, friend, neighbor, or other caregiver. Availability varies by VA medical center and community. Veterans should ask a VA social worker whether the program is offered in their area. (Veterans Affairs)

VA respite care

VA respite may be provided:

  • In the veteran's home
  • At an adult day health center
  • Through a short nursing-home stay

VA states that nursing-home respite is generally available for up to 30 days in a calendar year. A copayment may apply according to service-connected status and financial information. (Veterans Affairs)

Aid and Attendance

Aid and Attendance is an increased monthly VA pension payment for an eligible veteran or survivor. It is not a separate insurance plan or a direct home-care service.

A person who already qualifies for a VA pension may also qualify for Aid and Attendance when, for example:

  • Another person is needed to help with bathing, feeding, or dressing.
  • The person is largely confined to bed because of illness.
  • The person resides in a nursing home because of a disability.
  • The person meets VA visual-impairment criteria.

The additional pension income may be used toward home care or other expenses. (Veterans Affairs)

Families should use accredited assistance when applying and should be cautious of people who charge to submit an initial VA benefits claim or recommend questionable transfers designed to create artificial eligibility.

Program of Comprehensive Assistance for Family Caregivers

The VA's Program of Comprehensive Assistance for Family Caregivers may provide an eligible primary family caregiver with:

  • A monthly stipend
  • Caregiver education and training
  • Mental health counseling
  • Certain travel benefits
  • CHAMPVA health coverage in some cases
  • At least 30 days of respite per year

The veteran and caregiver must apply together and complete VA's assessment process. (Caregiver Support)

The VA Community Care Network

The VA Community Care Network, or CCN, connects VA with approved healthcare providers outside VA facilities.

CCN is not a separate insurance policy, cash benefit, caregiver stipend, or open reimbursement account. It is the contracted network VA uses to purchase authorized care from community providers when applicable requirements are met.

The network includes more than one million community providers and is divided into five regions. Optum manages Regions 1 through 3, and TriWest manages Regions 4 and 5. (U.S. Department of Veterans Affairs)

When a veteran may qualify for community care

The veteran generally must be enrolled in or eligible for VA healthcare and receive approval from the VA healthcare team before obtaining routine community care.

At least one additional circumstance usually applies, such as:

  • VA does not provide the needed service.
  • VA cannot provide care within designated wait-time or drive-time standards.
  • Community care is in the veteran's best medical interest.
  • VA cannot provide care meeting applicable quality standards.
  • The veteran lives in an area without a full-service VA medical facility.
  • The veteran qualifies under certain grandfathered distance rules.

VA's current access standards generally use a 30-minute average drive time or 20-day wait for primary care, mental health, and extended outpatient services, and a 60-minute drive time or 28-day wait for specialty care. (Veterans Affairs)

Can CCN be used for care at home?

VA may authorize community providers to deliver services such as:

  • Home health care
  • Skilled nursing
  • Rehabilitation
  • Hospice
  • Certain extended-care services
  • Other medically necessary care included in a VA referral

VA's community-care guidance lists home health, rehabilitation, nursing-home care, and certain other services among the types of care that may be provided through approved community providers. (U.S. Department of Veterans Affairs)

CCN should not be confused with Veteran-Directed Care. Veteran-Directed Care is a self-directed personal-care program. CCN is the network and payment mechanism VA uses to arrange authorized community services.

Prior authorization is essential

Except for qualifying urgent or emergency care, the veteran must generally obtain VA authorization before receiving care from a community provider.

The authorization letter identifies:

  • The approved provider
  • The authorized service
  • The authorization number
  • The number of visits or approved period
  • The circumstances in which a new referral is required

VA does not ordinarily cover services that fall outside the authorization. If additional visits, procedures, or time are needed, the provider must request further approval. (Veterans Affairs)

A family should not independently hire a home care or home health agency, pay the bill, and assume VA will reimburse it later.

The best starting point is the veteran's VA primary care team, geriatric team, social worker, or caregiver-support coordinator. Ask for an assessment of all relevant programs rather than requesting CCN alone.

5

Long-Term Care Insurance

Long-term care insurance is designed to help pay for extended personal and custodial care that regular health insurance and Medicare generally do not cover.

Depending on the policy, benefits may apply to care received:

  • At home
  • Through an adult day program
  • In assisted living
  • In memory care
  • In a nursing home
  • Through respite services

Policies often reimburse covered expenses up to a daily or monthly limit. Some pay a fixed cash or indemnity benefit regardless of the exact amount spent.

Common benefit triggers

Most policies require the insured person to meet a benefit trigger. A common trigger is needing substantial assistance with at least two activities of daily living or requiring substantial supervision because of cognitive impairment.

Policies may also require an elimination period, which is a waiting period during which the policyholder must qualify for care but the insurer does not yet pay benefits. (ACL)

Families should review:

  • The exact benefit trigger
  • Elimination-period rules
  • Daily or monthly limits
  • Total benefit pool
  • Covered settings
  • Provider qualifications
  • Whether informal family care is covered
  • Whether the policy reimburses expenses or pays cash
  • Inflation protection
  • Care-management requirements
  • Premium-waiver provisions
  • Claim-submission procedures

Long-term care insurance is generally easier to obtain before substantial health problems or ADL limitations develop. Most individual policies use medical underwriting, and someone already receiving long-term care or living with dementia may not qualify for a new traditional policy. (ACL)

State Long-Term Care Partnership policies

Many states have Partnership programs connecting qualifying private long-term care insurance policies with Medicaid.

A Partnership-qualified policy may allow the policyholder to retain assets above the ordinary Medicaid limit in an amount related to benefits paid by the policy. Eligibility, inflation-protection rules, reciprocity, and estate-recovery treatment are state-specific. (ACL)

Families should confirm that a policy is formally Partnership-qualified in the relevant state. A regular long-term care policy does not automatically receive Partnership protection.

6

Hybrid Life Insurance and Other Life Insurance Options

Some life insurance policies include a long-term care rider or chronic-illness rider. Others are combination products designed to provide:

  • Long-term care benefits during the insured person's lifetime
  • A death benefit if care is not needed
  • A reduced death benefit after long-term care benefits are used

An existing policy may also offer:

  • An accelerated death benefit
  • Cash-value withdrawals
  • A policy loan
  • A life settlement
  • A viatical settlement for someone who is terminally ill

These options can create money for care, but they may reduce or eliminate the amount ultimately paid to beneficiaries. Loans and withdrawals can also affect policy performance and may cause the policy to lapse.

Before changing, borrowing against, or selling a policy, request a written illustration showing:

  • The amount available
  • Fees and interest
  • Effect on the death benefit
  • Tax treatment
  • Effect on Medicaid eligibility
  • Effect on estate planning
  • What happens if the policy lapses

ACL identifies personal funds, life insurance, annuities, reverse mortgages, and long-term care insurance among the private resources families may combine to fund long-term care. (ACL)

7

PACE: Coordinated Medical and Long-Term Care

The Program of All-Inclusive Care for the Elderly, or PACE, integrates medical care and long-term support through a single program.

PACE may cover:

  • Primary and specialty care
  • Prescription drugs
  • Home care
  • Personal care
  • Adult day services
  • Nursing
  • Therapy
  • Meals
  • Transportation
  • Medical equipment
  • Hospital care
  • Nursing-home care when needed

A person may qualify when the person:

  • Is at least 55
  • Lives in a PACE organization's service area
  • Meets the state's nursing-home level-of-care standard
  • Can live safely in the community with PACE support

PACE is available only in participating service areas. A Medicaid-eligible participant generally does not pay a monthly PACE premium. A Medicare beneficiary who does not qualify for Medicaid may pay premiums for the long-term care and prescription portions of the program. PACE does not charge a deductible, copayment, or coinsurance for care approved by the PACE team. (Medicare)

PACE can be particularly helpful for someone with multiple medical and personal-care needs. Joining PACE changes how the person receives Medicare and Medicaid services, so the program should be evaluated as an integrated care system — not merely as an hourly home-care benefit.

8

Area Agencies on Aging and Community Programs

Area Agencies on Aging, commonly called AAAs, coordinate local services for older adults and caregivers. An AAA may be a county office, regional council, nonprofit organization, city agency, or council of governments.

AAAs do not usually provide unlimited free home care. They may, however, arrange, fund, or refer people to services that reduce the number of privately paid caregiving hours required.

Depending on local funding and eligibility, services may include:

  • Homemaker assistance
  • Personal care
  • Home-delivered meals
  • Congregate meals
  • Transportation
  • Adult day services
  • Respite
  • Caregiver education
  • Benefits counseling
  • Legal assistance
  • Home-safety programs
  • Senior centers
  • Energy and housing assistance
  • Long-term-care options counseling

AAAs serve geographic planning and service areas that may include a city, one county, or multiple counties. (ACL)

The federal Eldercare Locator connects families with their local AAA and other aging services. It can be reached at 1-800-677-1116. (ACL)

National Family Caregiver Support Program

The National Family Caregiver Support Program funds state and local services for unpaid caregivers.

Available support may include:

  • Information about services
  • Help accessing benefits
  • Individual counseling
  • Support groups
  • Caregiver training
  • Respite
  • Limited supplemental services

Availability, eligibility, and the amount of assistance vary locally. (ACL)

State Health Insurance Assistance Programs

Every state and several territories have a State Health Insurance Assistance Program, or SHIP. These programs provide free, objective Medicare counseling to beneficiaries, families, and caregivers.

A SHIP counselor can help compare:

  • Original Medicare and Medicare Advantage
  • Medicare home health coverage
  • Medigap
  • Prescription drug plans
  • Medicare Savings Programs
  • Medicaid coordination
  • Extra Help
  • Coverage notices and appeals

A SHIP may have a different local name, such as SHINE, HICAP, VICAP, or SHICK. (SHIAP)

9

Hospice Benefits

Hospice provides comfort-focused care for a person who meets the program's terminal-illness requirements and elects hospice rather than curative treatment for the terminal condition.

Medicare-certified hospice may cover:

  • Nursing
  • Hospice aides and homemaker services
  • Medical equipment
  • Medical supplies
  • Medications for pain and symptom control
  • Social work
  • Counseling
  • Therapy included in the plan of care
  • Short-term inpatient symptom management
  • Short-term inpatient respite

Medicare recognizes four levels of hospice care:

  1. Routine home care
  2. Continuous home care during a brief medical crisis
  3. Inpatient respite care
  4. General inpatient care for symptoms that cannot be managed elsewhere

Continuous home care is available only during qualifying periods of crisis and consists primarily of nursing. Inpatient respite may be provided for up to five consecutive days at a time to give the caregiver a break. (Centers for Medicare & Medicaid Services)

Hospice is not a general 24-hour custodial home-care benefit. Families should ask the hospice to explain:

  • How often the nurse will visit
  • How often an aide will visit
  • What the hospice provides
  • What the family is expected to provide
  • How after-hours emergencies are handled
  • When continuous care may be authorized
  • How respite is arranged
10

Home Equity, Reverse Mortgages, and Downsizing

For homeowners, home equity may be a source of care funding.

Options include:

  • Selling the home
  • Downsizing
  • Renting part of the property
  • A home equity loan
  • A home equity line of credit
  • A family loan secured by the property
  • A reverse mortgage

Reverse mortgages

A Home Equity Conversion Mortgage, or HECM, is the most common federally insured reverse mortgage. It is generally available to homeowners age 62 and older who meet applicable requirements.

Unlike a traditional mortgage, the borrower does not make regular monthly principal-and-interest payments. Interest and fees are added to the balance, causing the loan balance to grow and home equity to decline.

The homeowner must generally:

  • Continue living in the home as the principal residence
  • Pay property taxes
  • Maintain homeowners insurance
  • Keep the home in acceptable condition
  • Satisfy other loan obligations

The loan typically becomes due when the borrower dies, sells the home, or no longer occupies it as a principal residence. A move to a healthcare facility lasting more than 12 consecutive months can also cause the loan to become due, subject to protections that may apply to an eligible co-borrower or non-borrowing spouse. (Consumer Financial Protection Bureau)

A reverse mortgage is a loan, not free money. Before proceeding, families should:

  • Compare multiple lenders.
  • Obtain HUD-approved counseling.
  • Review fees and interest.
  • Understand the effect on heirs.
  • Consider whether a spouse can remain in the home.
  • Evaluate less expensive alternatives.
  • Avoid contractors or salespeople who pressure the homeowner to borrow.
11

Annuities, Trusts, and Other Financial Arrangements

Annuities

An annuity converts a lump sum or series of payments into a stream of income that may be used for home care.

An immediate annuity begins payments relatively soon. A deferred annuity begins payments later and may include features designed to help with long-term care expenses.

Before purchasing an annuity, review:

  • When payments begin
  • Whether payments are guaranteed for life or for a fixed term
  • Inflation protection
  • Access to principal
  • Surrender charges
  • Insurer financial strength
  • Beneficiary provisions
  • Tax consequences
  • Medicaid treatment

An annuity may produce less income than the cost of care, and inflation can reduce the purchasing power of a fixed payment. Annuities may also affect Medicaid eligibility. (ACL)

Trusts

Trusts can be used to manage assets for an older adult or a person with disabilities. However, a trust does not automatically protect assets or create Medicaid eligibility.

Medicaid applies detailed rules to trusts created with the applicant's or spouse's assets. Families should not create or fund a trust for long-term care planning without advice from an attorney familiar with Medicaid, tax, estate, and trust law. (ACL)

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Tax Benefits and Health Savings Accounts

Tax benefits rarely pay the entire cost of home care, but they may reduce the net cost.

Medical-expense deduction

Qualified long-term care services may be treated as medical expenses when they are:

  • Required by a chronically ill individual
  • Provided under a plan of care prescribed by a licensed healthcare practitioner

For this purpose, a person may be considered chronically ill when a licensed practitioner certifies that the person cannot perform at least two ADLs without substantial assistance for at least 90 days or requires substantial supervision because of severe cognitive impairment.

Eligible unreimbursed expenses may be included with other medical expenses on Schedule A. Only the portion of total qualifying medical expenses exceeding 7.5% of adjusted gross income is deductible.

Ordinary housekeeping or companionship is not automatically a medical expense. When a caregiver performs both qualifying personal or nursing care and ordinary household work, records should separate the services and costs. (IRS)

Useful documentation includes:

  • A written care plan
  • Medical certification
  • Caregiver invoices
  • Timesheets
  • Proof of payment
  • Descriptions of services
  • Insurance reimbursement statements
  • A breakdown of medical and non-medical tasks

Health Savings Accounts

HSA funds can generally be withdrawn tax-free for qualified medical expenses that have not been reimbursed elsewhere.

Depending on the circumstances, qualified expenses may include:

  • Qualified long-term care services
  • Certain nursing services
  • Medical equipment
  • Limited qualified long-term care insurance premiums

A person may continue using money already in an HSA for qualified expenses after becoming ineligible to make new contributions. The same expense cannot be reimbursed tax-free from an HSA and also claimed as an itemized medical deduction. (IRS)

Child and Dependent Care Credit

An employed taxpayer may qualify for the Child and Dependent Care Credit when paying for care for:

  • A spouse who is physically or mentally incapable of self-care, or
  • A qualifying dependent who is incapable of self-care

The expense must generally allow the taxpayer — and spouse, when applicable — to work or look for work. The person receiving care must meet residency and dependency-related requirements.

An expense cannot be used both for the dependent-care credit and as a medical deduction. (IRS)

Tax rules depend on the family's facts and the type of service. A qualified tax professional should review significant home-care expenses.

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Other Possible Payment Sources

Some families may have access to additional funding because of the cause of the person's care needs or the person's employment history.

Possible sources include:

  • Workers' compensation
  • Automobile insurance or legal settlements after an accident
  • Disability insurance
  • Employer retiree benefits
  • Union benefits
  • Tribal aging programs
  • State-funded home-care programs
  • Charitable grants
  • Disease-specific foundations
  • Religious or community organizations
  • Employee assistance or caregiver benefits
  • Flexible spending or dependent-care accounts
  • State respite voucher programs

These programs are not universal and may have narrow eligibility rules. A hospital social worker, Area Agency on Aging, Aging and Disability Resource Center, benefits counselor, employer benefits office, or attorney can help identify relevant options.

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Combining Several Payment Sources

For many families, the most sustainable plan combines several forms of support.

Example: Home care after hospitalization. A person returns home after surgery. Medicare covers qualifying nursing and physical therapy. The family privately hires a caregiver for bathing, meals, and evening supervision. The local AAA arranges transportation and home-delivered meals.

Example: Dementia care. A person with Original Medicare enrolls with a participating GUIDE organization. GUIDE provides dementia-care navigation, caregiver education, 24-hour support, and limited respite. The family purchases additional caregiving hours beyond the respite allowance and uses an adult day program twice a week.

Example: Medicaid self-direction. A person qualifies for a Medicaid home and community-based waiver. Medicaid authorizes personal-care hours, and the state's self-directed program allows an adult child to serve as the paid worker. The family privately purchases occasional agency backup care.

Example: Veteran care. An eligible veteran receives authorized home health services from a CCN provider and personal assistance through a VA home and community-based program. The spouse receives caregiver training and respite support. Aid and Attendance pension income helps pay for uncovered hours.

Example: Long-term care insurance. A policy reimburses up to a specified daily amount after the elimination period. Retirement income pays the remaining agency bill, while a meal program and senior transportation reduce the number of caregiver hours required.

These are illustrations, not promises of eligibility. Each payer must approve its part of the plan.

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Ways to Make a Home-Care Budget Last Longer

The number of hours purchased often affects the budget more than a small difference in hourly rates.

Families may be able to reduce costs by:

  • Scheduling paid care during the highest-risk times
  • Combining bathing, dressing, meals, and laundry into one shift
  • Using adult day services on selected days
  • Arranging meal delivery instead of paying a caregiver to prepare every meal
  • Using senior transportation for routine trips
  • Installing grab bars, improved lighting, ramps, or other safety modifications
  • Using medication dispensers or emergency-response systems
  • Alternating professional and family coverage
  • Requesting caregiver training
  • Reviewing medications and fall risks with clinicians
  • Comparing several agencies using the same written care description
  • Reassessing whether every task requires a licensed nurse

CareScout's 2025 survey reported a national median of $95 per day for adult day health care, compared with $35 per hour for non-medical in-home care. Adult day care does not replace all in-home care, but it may provide supervision, meals, activities, and social contact at a lower daily cost for an appropriate participant. (Genworth Financial, Inc.)

Cost-saving decisions should not compromise essential help with transfers, toileting, medication administration, feeding, wandering prevention, or other safety-critical needs.

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A Step-by-Step Home-Care Funding Plan

Step 1: List the actual care needs. Document the tasks requiring assistance, when they occur, how long they take, and whether they require a caregiver, nurse, therapist, or other professional.

Step 2: Build a weekly schedule. Identify periods that require paid coverage and periods that can safely be handled by family, friends, adult day services, transportation programs, or meal delivery.

Step 3: Obtain comparable price quotes. Give each provider the same care description. Ask about minimum shifts, deposits, overtime, holidays, mileage, cancellation policies, and rate increases.

Step 4: Screen for public benefits. Contact:

  • The state Medicaid agency
  • The local Area Agency on Aging
  • The Aging and Disability Resource Center
  • The Eldercare Locator
  • The local SHIP
  • A VA social worker when applicable
  • A PACE organization
  • A GUIDE participant when dementia is involved

Step 5: Review existing insurance and benefits. Look for:

  • Long-term care insurance
  • Life insurance riders
  • Employer or union benefits
  • Annuities
  • Veterans benefits
  • Accident-related coverage
  • Retiree benefits
  • HSA balances

Step 6: Address legal and payroll issues. Use written contracts, proper payroll, powers of attorney, healthcare directives, and care agreements. Obtain elder-law or tax advice before transferring assets or creating a trust.

Step 7: Create an emergency backup plan. Identify who will provide care when:

  • The regular caregiver is sick
  • Severe weather prevents travel
  • The care recipient's condition suddenly worsens
  • A family caregiver becomes unavailable
  • The agency cannot fill a shift

Step 8: Reassess the plan regularly. Review the plan after:

  • A hospitalization
  • A fall
  • New wandering or behavioral symptoms
  • Medication changes
  • A change in mobility
  • Caregiver burnout
  • A major financial change
  • A benefit approval or denial

Common Home-Care Payment Mistakes

Assuming Medicare will cover ongoing personal care. Medicare home health is a skilled, medically ordered benefit. It is not a general source of long-term bathing, dressing, meal, transportation, or supervision services. (Medicare)

Assuming GUIDE is a general dementia-care allowance. GUIDE respite is limited, tied to an eligible patient enrolled with a participating organization, and arranged within the model. It is not an unrestricted payment for any caregiver the family selects. (Centers for Medicare & Medicaid Services)

Receiving VA community care without authorization. Routine CCN services generally require advance VA approval. Services outside the authorization may not be paid. (Veterans Affairs)

Giving away assets to qualify for Medicaid. Transfers for less than fair market value during the five-year lookback may delay Medicaid long-term-care eligibility. (Medicaid)

Assuming an insurance policy covers every caregiver. A policy may require a licensed agency, approved plan of care, benefit trigger, elimination period, or specific documentation.

Paying a household caregiver without addressing employment rules. A directly hired caregiver may be the family's employee, creating federal and state payroll obligations. (IRS)

Waiting until a crisis to apply. Assessments, applications, provider enrollment, appeals, and waiting lists can delay services. Begin screening as soon as ongoing help appears likely.

Using all available family labor without respite. Unpaid care can lower financial costs, but an exhausted family caregiver may be unable to sustain the arrangement safely. Respite should be treated as part of the care plan, not an optional luxury.

Frequently Asked Questions

Does Medicare pay for home care?

Medicare may cover qualifying part-time or intermittent skilled home health services ordered by a healthcare provider and delivered by a Medicare-certified agency. It generally does not pay for ongoing personal or custodial care when that is the only assistance needed.

Does Medicare pay for a 24-hour caregiver?

No. Medicare does not pay for 24-hour care at home. It may cover qualifying intermittent skilled visits and limited home health aide care associated with covered skilled services.

Does the Medicare GUIDE Model pay family caregivers?

GUIDE provides education, support, navigation, and qualifying respite, but it does not provide an unrestricted caregiver wage or direct cash stipend. CMS reimburses participating organizations for approved GUIDE services.

Can someone with Medicare Advantage enroll in GUIDE?

Not under current CMS eligibility rules. The individual must be enrolled in Medicare Parts A and B and cannot be enrolled in Medicare Advantage or PACE.

How much respite can GUIDE provide?

The base cap is up to $2,500 annually per eligible patient, adjusted for inflation. The actual amount and services depend on the patient's GUIDE tier and care plan. GUIDE services are not subject to patient cost-sharing.

Can Medicaid pay a family member to provide home care?

Sometimes. Many states have self-directed programs that allow certain relatives to be paid caregivers. Whether a spouse, parent, or other legally responsible relative can be paid depends on the state and program.

Can a person qualify for Medicaid home care without entering a nursing home?

Yes. Medicaid home and community-based programs are intended to help qualifying people receive services at home or in another community setting rather than an institution. Financial, functional, and program-specific eligibility rules apply.

Does VA pay for home care?

VA may provide or arrange homemaker services, home health aides, skilled home health, respite, adult day care, Veteran-Directed Care, hospice, and other services for eligible veterans. Clinical need, enrollment, availability, and authorization rules apply.

Is the VA Community Care Network the same as Veteran-Directed Care?

No. CCN is VA's contracted network for authorized community healthcare. Veteran-Directed Care is a program through which qualifying veterans may direct an approved personal-care budget and hire workers.

Can a veteran choose any home care agency and send the bill to VA?

Generally, no. Except for applicable urgent or emergency-care rules, VA must approve the service and provider before care is received. The authorization determines what VA will cover.

Can Social Security income be used for home care?

Yes. Social Security income can be used to pay household and personal expenses, including home care. It does not create a separate home-care benefit.

Can long-term care insurance cover care at home?

Many policies cover home care, but the insured person must satisfy the policy's benefit trigger and elimination period. Provider restrictions, daily limits, total benefit pools, and documentation requirements apply.

Can a person buy long-term care insurance after home care has begun?

It may be difficult or impossible. Most traditional individual policies use medical underwriting, and people already receiving care, needing help with ADLs, or living with dementia may not qualify.

Is home care tax-deductible?

Some medically necessary personal-care or nursing expenses may qualify when provided to a chronically ill person under a prescribed plan of care. Ordinary companionship and housekeeping do not automatically qualify. Itemized medical-expense thresholds and other rules apply.

Can HSA funds be used for home care?

HSA funds may be used tax-free for qualifying medical expenses. Certain qualified long-term care services and limited qualified long-term care insurance premiums may qualify, but ordinary non-medical assistance may not.

Does hospice provide 24-hour care at home?

Hospice may provide continuous home care during brief qualifying medical crises. Routine hospice does not ordinarily supply a caregiver in the home around the clock.

Can a reverse mortgage be used to pay for home care?

Yes. Reverse-mortgage proceeds may be used for home care, but interest and fees increase the loan balance and reduce home equity. The borrower must continue satisfying property and occupancy obligations.

Where should a family begin when it cannot afford private home care?

Start with the local Area Agency on Aging, state Medicaid agency, Aging and Disability Resource Center, and Eldercare Locator at 1-800-677-1116. A Medicare beneficiary can also contact the local SHIP, and a veteran should request an assessment from a VA social worker.

Sources Used

Cost of care

  1. CareScout and Genworth Financial — 2025 Cost of Care Survey Results. National median rates for non-medical home care, private-duty nursing, adult day health care, assisted living, and nursing-home care. (Genworth Financial, Inc.)
  2. CareScout — Guide to Paying for Long-Term Care. Overview of private payment, insurance, Medicaid, and care-setting costs. (CareScout)

Medicare and CMS

  1. Medicare.gov — Home Health Services. Eligibility, covered services, exclusions, and patient costs. (Medicare)
  2. Medicare.gov — Long-Term Care. Explanation that Medicare generally does not cover custodial long-term care. (Medicare)
  3. Medicare.gov — Caregiver Training Services. Coverage requirements and patient costs. (Medicare)
  4. CMS — GUIDE Model Overview. Model design, care navigation, caregiver support, and respite benefits. (Centers for Medicare & Medicaid Services)
  5. CMS — GUIDE Model Frequently Asked Questions. Eligibility, cost-sharing, respite payment limits, residential care communities, and memory-care restrictions. (Centers for Medicare & Medicaid Services)
  6. Medicare.gov — PACE. Eligibility, services, and participant costs. (Medicare)
  7. CMS — Medicare Hospice Benefit. Covered services, continuous home care, inpatient respite, and hospice levels of care. (Centers for Medicare & Medicaid Services)
  8. Medicare.gov — Medigap Coverage. Services Medigap generally does and does not cover. (Medicare)

Medicaid

  1. Medicaid.gov — Section 1915(c) Home and Community-Based Services. Waiver eligibility and covered home and community services. (Medicaid)
  2. Medicaid.gov — Section 1915(j) Self-Directed Personal Assistance. Consumer direction and payment of certain relatives. (Medicaid)
  3. Medicaid.gov — Eligibility Policy. Five-year asset-transfer rules and long-term-care eligibility considerations. (Medicaid)
  4. Medicaid.gov — Spousal Impoverishment. Income and resource protections for community spouses. (Medicaid)
  5. Medicaid.gov — Estate Recovery. Recovery requirements and family protections. (Medicaid)

Veterans benefits and community care

  1. U.S. Department of Veterans Affairs — Home and Community-Based Services. VA homemaker, home health, Veteran-Directed Care, respite, adult day, hospice, and related programs. (Veterans Affairs)
  2. VA — Aid and Attendance and Housebound Benefits. Eligibility and application information. (Veterans Affairs)
  3. VA Caregiver Support Program — Program of Comprehensive Assistance for Family Caregivers. Stipend, respite, counseling, training, and other caregiver benefits. (Caregiver Support)
  4. VA — Community Care Network. Network regions and administration by Optum and TriWest. (U.S. Department of Veterans Affairs)
  5. VA — Eligibility for Community Care Outside VA. Basic eligibility, access standards, and qualifying circumstances. (Veterans Affairs)
  6. VA — Community Care Referrals and Appointments. Referral, authorization, and ongoing-care requirements. (Veterans Affairs)
  7. VA — Community Care Covered Services. Types of care that may be provided by authorized community providers. (Veterans Affairs)

Aging, caregiver, and insurance resources

  1. Administration for Community Living — Area Agencies on Aging. AAA structure and community services. (ACL)
  2. Administration for Community Living — National Family Caregiver Support Program. Caregiver information, counseling, training, respite, and supplemental support. (ACL)
  3. Administration for Community Living — Long-Term Care Insurance. Coverage, policy limits, underwriting, and benefit design. (ACL)
  4. Administration for Community Living — Long-Term Care Partnership Programs. Partnership-qualified policies and Medicaid asset disregard. (ACL)
  5. Administration for Community Living — Annuities. Immediate and deferred annuity considerations. (ACL)
  6. SHIP Technical Assistance Center — About SHIPs. Free, objective Medicare counseling. (SHIAP)

Taxes and home equity

  1. Internal Revenue Service — Publication 926. Household-employer classification, taxes, and reporting. (IRS)
  2. Internal Revenue Service — Publication 502. Qualified long-term care services and medical-expense deductions. (IRS)
  3. Internal Revenue Service — Publication 969. HSA distributions and qualified medical expenses. (IRS)
  4. Internal Revenue Service — Publication 503. Dependent-care expenses for a spouse or dependent incapable of self-care. (IRS)
  5. Consumer Financial Protection Bureau — Reverse Mortgages. HECM structure, repayment, ongoing homeowner obligations, and risks. (Consumer Financial Protection Bureau)

A local home care provider can often help you understand which payment options apply to your situation and walk you through the application process.

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